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Heading to camp

Posted: Friday, July 17, 2009 4:49 PM by Sam Singal

By Kevin Tibbles, NBC News correspondent

For kids, the summer months are filled with the sounds of swimming, summer camp and songs. To be deprived of the opportunity to run and jump, or splash and laugh is downright un-kid-like. Still, for children born with severe heart defects, those sorts of activities have traditionally been out of the question; too risky even to spend the night at grandma's house, or throw some pillows at a pajama party. That's when the medical staff at the St. Louis Children's Hospital had an idea; and that is how 'Camp Rhythm' was born. A week-long sleepover camp that comes with cardiologists as well as campfires. At Camp Rhythm those long 'zipper-like' scars down the front of each kids chest simply means that, probably for the first time in their lives, they look just like everybody else. It's a place filled with those familiar sounds of summer, where worried moms and dads can rest easy because their children are in good hands; even if those hands are covered in the post campfire chocolate residue of one too many s'mores. Camp Rhythm is tonight's Making a Difference. Kevin Tibbles NBC News.

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Thank you for this report.  I wish a camp had existed like that 30 years ago when I was one of those "zipper kids" who never spent a night away from home and always felt different.  At 37 I'm a healthy, independent woman who no longer identifies myself based upon my scar or the medical challenges I had/have. It's nice to know that the generation of children presently growing up with heart defects (many more challenging then what I had because medical technology has advanced so much for more children to survive) have an opportunity to feel normal by going to this camp and enjoying their summers.
My Granddaughter who is 5 years old and has had 3 open heart surgeries attended Camp Rhythm and loved it, and being just a regular kid. Thanks to all the volunteers who donated their time,these Children had an experience they would otherwise be denied.
As the mom of an adorable daughter born with heart defects, I am so excited to see you recognizing facilities like Camp Rhythm. My daughter has attended The Center for Courageous Kids in Scottsville, KY and it has changed her life. She has met children from across the country and they spend a week together in tiny Scottsville horseback riding, creating arts and crafts, swimming, boating, and fishing. And just as important- Courageous Kids has Family Weekends during the school year when we camp as a whole family and I have been able to meet dozens of other parents going through exactly what I am experiencing. Thanks again!!
Thank you Kevin for spotlighting Camp Rhythm.  I have a special place in my heart for Camp Rhythm.  Forty five years ago my nephew died of an inoperable congenital heart defect that today would be almost "minor surgery".  When my daughter n law Dr. Angela Sharkey, MD asked me to volunteer at Camp Rhythm I was so pleased and delighted to be of service to assist in making the week of Camp as wonderful as possible for these great KIDS!  Angela's husband, Gerry, and their children, Chris, 17, John 16 and Sammi 14 also volunteer at Camp and bring lots of joy and laughter as well as support to the KIDS.  With deep appreciation.  "Granny Sue"
I wish my daughter who is 2years old living who has inoperable hole in the heart will one day have this opportunity. well done.


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